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| | Thalassemia - Wikipedia, the free encyclopedia |
 | | Genetic counseling and genetic testing is recommended for families that carry a thalassemia trait. | | | This is believed to be a selective survival advantage for patients with the various thalassemia traits. | | | "Deferiprone versus deferoxamine in patients with thalassemia major: a randomized clinical trial". |
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http://en.wikipedia.org/wiki/Thalassemia
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| | About Thalassemia |
| | Since thalassemia is not a single disorder but a group of related disorders that affect the human body in similar ways, it is important to understand the differences between the various types of thalassemia. | | | However, there is a wide range in the clinical severity of this condition, and the borderline between thalassemia intermedia and the most severe form, thalassemia major, can be confusing. | | | To understand how thalassemia affects the human body, you must first understand a little about how blood is made. |
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http://www.thalassemia.org/sections.php?sec=1
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| | Dr. Koop - Thalassemia- Health Encyclopedia and Reference |
| | Additionally, splenectomy (removal of the spleen), bone marrow transplants and chelation therapy are being researched as possible treatments for thalassemia. | | | Thalassemia trait is present at birth, it remains the same for life, and it can be handed down from parents to children. | | | You should promptly seek professional medical care if you have any concern about your health, and you should always consult your physician before starting a fitness regimen. |
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http://www.drkoop.com/encyclopedia/43/477.html
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| | Thalassemias |
| | If you are thinking of having children, particularly if you have any thalassemia in your family, it's a good idea to speak with a genetic counselor to determine your risk of passing on the disease to any future children. | | | If your healthcare providers determine that your child is at risk for being affected by thalassemia, there are prenatal tests that you can have to find out if your unborn child is affected by the disease. | | | If only one parent passes the gene for thalassemia on to the child, then the child is said to have thalassemia trait. |
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http://kidshealth.org/parent/medical/heart/thalassemias.html
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| | eMedicine - Thalassemia : Article by Jack P Lawson, MD |
| | With the exception of sickle cell thalassemia, in which radiographic changes may reflect vaso-occlusive phenomena, as well as the changes of marrow hypertrophy, the radiographic appearances of these variants are solely the result of marrow proliferation and, consequently, are dependent on the degree and duration of any anemia and the type of transfusion therapy. | | | Patients with thalassemia intermedia are an interesting subset of those with thalassemia, constituting 5-10% of patients with thalassemia major. | | | Anatomy: Changes that occur in the osseous system of patients with thalassemia major are the result of marrow hypertrophy and hyperplasia in response to chronic anemia. |
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http://www.emedicine.com/radio/topic686.htm
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| | eMedicine - Thalassemia : Article by Hassan M Yaish, MD |
| | Another surgical procedure in patients with severe thalassemia on transfusion therapy is the placement of a central line for the ease and convenience of administering blood transfusions, chelation therapy, or both. | | | thalassemia is essential before the patient and the family are counseled. | | | Parents and caregivers of patients with severe thalassemia are frequently confronted with a choice between standard therapy and HSCT. |
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http://www.emedicine.com/ped/topic2229.htm
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| | Thalassemia overview |
| | More confusion comes from the fact that the clinical descriptions of thalassemia were coined before the molecular basis of the thalassemias were uncovered. | | | This is the condition of severe thalassemia in which chronic blood transfusions are needed | | | Review of thalassemia is best approached by separately examining its genetic basis and clinical expression. |
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http://sickle.bwh.harvard.edu/thalover.html
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| | Thalassemia |
| | Because alpha thalassemia major is most often a condition that is fatal in the prenatal or newborn period, treatment has previously been focused on identifying affected pregnancies in order to provide appropriate management to reduce potential maternal complications. | | | Otherwise, their medical outlook is similar to a child with beta thalassemia major, with the important exception that ongoing, lifelong blood transfusions begin right at birth. | | | Increased prenatal surveillance and early treatment of maternal complications is an approach that is appropriate for mothers who wish to continue their pregnancy with the knowledge that the baby will most likely not survive. |
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http://www.lifesteps.com/gm/Atoz/ency/thalassemia.jsp
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| | Thalassemia Support Foundation |
| | Individuals with thalassemia are often smaller than their peers due to the fact that they generally grow slower. | | | It is hard to measure specifically how thalassemia will or does affect you. | | | This then results in organs that are starved for oxygen and unable to function properly. |
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http://www.helpthals.org/thalassemia.htm
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| | Medical References: Thalassemia |
| | In addition, improved bone marrow transplantation methods may lead to wider use of the technique as a treatment for thalassemia. | | | The most severe form of alpha thalassemia, which affects mainly individuals of Southeast Asian, Chinese and Filipino ancestry, results in fetal or newborn death. | | | The drug is usually administered daily via a mechanical pump that pumps the drug underneath the skin while the child is sleeping. |
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http://www.marchofdimes.com/professionals/681_1229.asp
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| | Thalassemia -- Cohen et al. 2004 (1): 14 -- Hematology |
| | I study in 10 patients with thalassemia and chronic iron overload | | | As clinical care of patients with thalassemia has improved and | | | Randomized controlled studies are now underway to determine if these preliminary findings represent improved access of DFP to myocardial iron, which, if true, would represent a significant clinical advance in the management of the cardiac complications of thalassemia. |
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http://www.asheducationbook.org/cgi/content/full/2004/1/14
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| | FamilyFun: Health Encyclopedia: Thalassemia - and More Family Fun |
| | Excerpt from THE DISNEY ENCYCLOPEDIA OF BABY & CHILD CARE, © 1995 DSH Communications, Inc. This material is based on current medical research and, to the best of the editors' knowledge and understanding, is accurate and valid. | | | Children need their parents' support and understanding to cope with these procedures. | | | FamilyFun: Health Encyclopedia: Thalassemia - and More Family Fun |
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http://www.familyfun.go.com/parenting/child/health/childhealth/dony89enc_thal
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| | ..:: Thalassemia Foundation of Canada ::.. |
| | Patients are encouraged to make use of this opportunity to attend the meeting and to bring forward questions and concerns about the current care at the Thalassemia clinic and the future of care delivery for Thalassemia patients. | | | The Thalassemia Foundation of Canada strongly encourages you to consult your health care provider with any questions or concerns you may have regarding your condition. | | | To support and fund thalassemia scientific research, treatment, patient services, public awareness and education. |
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http://www.thalassemia.ca
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| | MedlinePlus Medical Encyclopedia: Thalassemia |
| | Hypertransfusion programs with chelation therapy improve outcome, and successful bone marrow transplantation is curative. | | | Calling your health care provider Return to top | | | Call for an appointment with your health care provider if symptoms develop that are suggestive of thalassemia. |
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http://www.nlm.nih.gov/medlineplus/ency/article/000587.htm
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| | Thalassemia |
| | Many hours of hard work have been done to help children, maybe even yours. | | | Contact Save Babies Through Screening for questions about the content of this site or the Webmaster for questions about technical issues related to this site. | | | Thalassemia is treated with medication and blood transfusions. |
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http://www.savebabies.org/diseasedescriptions/thalassemia.php
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| | Cooley's Anemia Foundation |
| | This information is for patients and their families, medical personnel, donors, Foundation volunteers, and anyone interested in learning about Cooley's Anemia and other forms of the genetic blood disorder, thalassemia. | | | The doctor has long been one of the most respected physicians in the thalassemia field. | | | As many as one-third of the population may carry a thalassemia trait - and people of Thai heritage living in other countries need to be aware of this fact. |
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http://www.thalassemia.org
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| | Thalassemia - Clinical Services - Children's Hospital Boston |
| | The program is one of only five centers in the country designated for clinical excellence in thalassemia by the National Cooley's Anemia Foundation. | | | Our program also offers a full-time thalassemia nurse practitioner, who works to identify patient needs and coordinate care. | | | Thalassemia is a complex disease that can create a wide range of medical complications. |
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http://www.childrenshospital.org/clinicalservices/Site1974/mainpageS1974P0.html
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| | Northern California's Comprehensive Thalassemia Center at at Children's Hospital Oakland |
| | The purpose of this website is to provide information which will result in improved quality of life and survival to thalassemia patients and their families. | | | Early comprehensive treatment has changed thalassemia from a fatal pediatric disease to one in which patients live productive lives throughout adulthood. | | | These patients and providers need information concerning recommendations for comprehensive screening tests, access to new research protocols and treatment including transfusion therapy, new chelation therapy, stem-cell transplantation, hormone replacement, heart disease, osteoporosis and hepatitis. |
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http://www.thalassemia.com
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| | Thalassemia - Home Page |
| | Blood Transfusion is one of the most regularly practiced treatments for Thalassemia. | | | Although chelation therapy has increased the life span of many patients, many thalassemia patients still die in infancy or childhood, particularly in areas where modern treatments are not available. | | | We intend to create a general, massive awareness about the illness and motivate people to support Thalassemia patients. |
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http://www.thalassemia.com.pk
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| | Thalassemia |
| | Unless the iron is removed with appropriate chelation therapy these patients die of hemosiderosis. | | | This is the most common of the thalassemias. | | | Homozygous Delta/Beta Thalassemia is similar to beta thalassemia, but symptoms are milder. |
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http://www.cariboo.bc.ca/schs/medtech/rice/thalassemia.html
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| | Thalassemia / Family Village Library |
| | Our mission is advancing the treatment and cure for this fatal blood disease, enhancing the quality of life of patients and educating the medical profession, trait carriers and the public about Cooley's anemia/thalassemia major. | | | The Cooley's Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley's anemia/thalassemia major. | | | This club was created for the education and support for Thalassemia. |
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http://www.familyvillage.wisc.edu/lib_thal.htm
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| | Thalassemia: Rochester Chapter: The Fight Against Thalassemia: Cooley's Anemia |
| | Let me know what you would like to see here and I will try to get it started. | | | This site was created to inform people of an inherited blood disorder called Thalassemia Major, also known as Cooley's Anemia, and to bring patients and families together for support and education on Thalassemia. | | | Usually two normal parents that both have a Thalassemia trait will pass on this disorder to their children not knowing that they were both carriers of the Thalassemia trait. |
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http://www.thalsite.com
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| | Thalassemia |
| | Cooley's Anemia Foundation - Funds medical research, patient services, public information and professional education to combat this fatal hereditary blood disease | | | Persatuan Thalassaemia Melaka (PTM) - Malacca association of Thalassemia. | | | Emirates Thalassemia Society - To assist and help patients suffering from Thalassemia disease |
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http://www.ability.org.uk/Thalassemia.html
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| | thalassemia |
| | Patients with thalassemia major (Cooley's anemia) have a much more serious illness, which requires lifelong transfusion therapy and nightly iron chelation treatments to fight iron overload from the numerous blood transfusions. | | | These patients do not respond to iron therapy, and sometimes the parents are suspected of not giving the iron properly. | | | Thallasemia major - the disease produced when an individual carries two genes for the defective hemoglobin - is a much more serious condition. |
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http://www.drhull.com/EncyMaster/T/thalassemia.html
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| | Berloni Foundation |
| | It is estimed that in Italy only, the number of patients affected by Thalassemia Major flucuates between 5,000 and 8,000 individuals. | | | If up until now correct transfusion therapy has been the only available treatment for patients affected by Thalassemia Major, it is today possible to cure the disease by way of performing bone marrow transplant using a compatible donor and in this way replacing diseased cells whit healty ones. | | | The term "Thalassemia" implies a genetic disorder of an extremely heterogenous group which is characterised by a reduced or erroneous production of haemoglobin, the respiratory pigment contained in the red cells. |
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http://www.abanet.it/fondazioneberloni/ing/talassem.htm
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| | Beta thalassemia - Genetics Home Reference |
| | Individuals with thalassemia intermedia may have no symptoms or mild symptoms through childhood and adolescence. | | | Signs and symptoms of beta thalassemia are severe in the form of the disorder known as thalassemia major and less severe in the form called thalassemia intermedia. | | | You might also find information on treatment of beta thalassemia in Educational resources and Patient support. |
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http://ghr.nlm.nih.gov/condition=betathalassemia
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| | What Is Thalassemia? |
| | Severe forms of thalassemia are usually diagnosed in early childhood and are lifelong conditions. | | | Cooley’s anemia is the most common severe form of thalassemia in the United States. | | | Thalassemia is an inherited blood disorder that causes mild or severe anemia (uh-NEE-me-uh). |
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http://nhlbi.nih.gov/health/dci/Diseases/Thalassemia/Thalassemia_WhatIs.html
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| | Thalassemia |
| | The only way to diagnose this condition is by DNA analysis. | | | Patients who have alpha thalassemia trait have smaller (microcytic), paler (hypochromic) red blood cells and a mild chronic anemia but do not generally experience any other symptoms. | | | A person with this condition has one normal gene and one with a mutation. |
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http://www.labtestsonline.org/understanding/conditions/thalassemia-2.html
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| | Iron Disorders Institute - Thalassemia |
| | Thalassemia on the other hand, is characterized by the inability to produce sufficient number of globin chains. | | | Those with thalassemia intermedia fluctuate between being asymptomatic and having symptoms as severe as those associated with thalassemia major. | | | Diagnosis of thalassemia major is confirmed by Hemoglobin electrophoresis with an increase in total hemoglobin, and analysis of lymphocyte DNA. |
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http://www.irondisorders.org/Disorders/Thalassemia.asp
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| | Thalassemia Thalassaemia |
| | For those who may not know, thalassemia is a medical disease whereby there is genetic defect in a human body and therefore resulted in a synthesis of an abnormal hemoglobin molecule. | | | Learn about Thalassemia, Thalassemia Trait and Thalassemia Symptoms | | | In medical terminology, thalassemia or thalassaemia is an inherited disease of the red blood cells and it is medically classified as hemoglobinopathy. |
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http://www.tam.org.my
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| | Thalassemia - Children's Hospital of Philadelphia |
| | The presenting signs and symptoms of all forms of thalassemia are those associated with anemia (a deficiency of red blood cells) in varying degrees from mild to severe. | | | Thalassemia is an inherited disorder that affects the production of normal hemoglobin (a type of protein in red blood cells that carries oxygen to the tissues in the body). | | | Thalassemia includes a number of different forms of anemia. |
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http://www.chop.edu/consumer/your_child/condition_section_index.jsp?id=-8809
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| | About Thalassemia |
| | The thalassemias are a group of genetic blood disorders that affect a person’s ability to produce hemoglobin. | | | Thalassemia comes from the Greek word "thalassemia" which means "anemia by-the-sea." The name thalassemia was coined at the University of Rochester in upstate New York by the Nobel Prize-winning pathologist George Whipple and the professor of pediatrics William Bradford from the Greek thalassa for sea and -emia meaning the blood. | | | Hemoglobin is the protein in our red blood cells that carries oxygen and nutrients to all parts of the body. |
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http://medindia.net/patients/patientinfo/thalassemia.asp
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| | MedlinePlus: Thalassemia |
| | The primary NIH organization for research on Thalassemia is the National Heart, Lung, and Blood Institute | | | Learning about Thalassemia (National Human Genome Research Institute) | | | You may also be interested in these MedlinePlus related pages: |
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http://www.nlm.nih.gov/medlineplus/thalassemia.html
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| | Thalassemia |
| | University of Rochester Medical Center (also in Cambodian, Laotian, Vietnamese), brochures, fact sheets - Alpha Thalassemia, Hemoglobin E, Beta Thalassemia, Hemoglobin C, Hemoglobin A, Hemoglobin D, Hemoglobin Lepore, Hemoglobin Arab, other |
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http://www.kumc.edu/gec/support/thalass.html
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