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| | Kids health info for parents : Thalassaemia |
 | | If both your child and his/her future partner are carriers of the thalassaemia trait, there is a danger for their children, but this can be avoided by planning the family carefully with the help of a doctor. | | | If your child's future partner does not have the thalassaemia trait, then there is no risk of their children having thalassaemia major. | | | There is no cure for thalassaemia major, and treatment must continue for life. |
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http://www.rch.org.au/kidsinfo/factsheets.cfm?doc_id=3734
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| | Thalassaemia |
| | The thalassaemias are a group of disorders that prevent the body from producing a sufficient quantity of high quality blood.As we will see, the human body relies on the blood to survive, |
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http://www.tif.ae
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| | A responsibility of the state and community: Thalassaemia prevention |
| | The most frustrating aspect of thalassaemia major is that the parents of a child having this disease are aware by his first birthday that the child is not going to survive beyond 25-30 years. | | | However as the situation in our country is far different, considering the ineffective health infrastructure, cultural taboos and religious misconceptions, it would be more practical to educate the community at large. | | | People need help in procurement of blood, purchase of drugs and expensive laboratory tests etc. To overcome these problems, it is important that all organizations related to thalassaemia work together and contribute in developing national policies and protocols to fight against the disorder. |
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http://www.telmedpak.com/generalpublicarticles.asp?a=1760
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| | [No title] |
| | Iron chelation therapy Iron overload occurs even in untransfused thalassaemia intermedia patients because of ineffective erythropoiesis, peripheral red cell breakdown and increased intestinal iron absorption. | | | This must be combined with a clinical approach however, as exceptions to disease severity on the basis of genetic analysis are not uncommon. | | | Pregnant women with thalassaemia intermedia need to be carefully monitored and transfusions may be necessary. |
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http://www.thalassaemia.org.cy/books/book1/ch11.doc
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| | Clinical Practice Guidelines : Thalassaemia and Abnormal Haemoglobins in Pregnancy |
| | Thalassaemia is an inherited condition that affects the production of haemoglobin, which carries oxygen in our blood. | | | The significance of particular haemoglobinopathies and their potential interaction in pregnancy is a complex subject that lies outside the normal range of practice for many obstetricians, midwives and general practitioners. | | | Detailed genetic counselling and family studies are important for future pregnancies. |
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http://www.rwh.org.au/rwhcpg/maternity.cfm?doc_id=3200
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| | Thalassaemia - Patient UK |
| | Beta thalassaemia is just one out of 600 genetic conditions affecting haemoglobin in humans. | | | The most important part a family can play is to learn as much as possible about beta thalassaemia major so that they can give support and encouragement to the person growing up and living with beta thalassaemia disease. | | | They offer free testing and counselling to the general public and support to individuals with thalassaemia and their families in hospital and community settings. |
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http://www.patient.co.uk/showdoc.asp?doc=23068993
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| | What is Thalassaemia? |
| | If children with Thalassaemia major are not treated, they have miserable lives. | | | The Doctor who is charge of all Thalassaemia Major patients is Dr Don Bowden. | | | People with Thalassaemia major can have babies only if their partner does not carry any sort of Thalassamia. |
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http://www.dibbo.org/what.html
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| | Big B joins thalassaemia eradication drive :: Gujarat Plus.com News |
| | Thalassaemia is an inherited blood condition in which there is a reduced synthesis of haemoglobin (see box). | | | These medicines are very expensive and administering them is equally painful for the child who is barely able to live through his/her teens. | | | "There is no satisfactory cure for thalassaemia major. |
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http://www.gujaratplus.com/news/Rajkot/45456.html
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| | Carrying Beta Thalassaemia - Information for people who have had a blood test that shows they carry Beta Thalassaemia |
| | In addition, if he or she is found to be a carrier, you need time to decide what to do. | | | If your partner is a carrier you both need clear information on any risk to your children, so that you can make the best choices for yourselves and your family. | | | Your body needs oxygen to function: as your blood circulates haemoglobin picks up oxygen in your lungs and carries it round to all parts of your body. |
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http://www.cmht.nwest.nhs.uk/directorates/nebata/carrying.asp
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| | KARACHI: 5,000 children born with thalassaemia every year -DAWN - Local; October 22, 2002 |
| | Speaking about thalassaemia management techniques, he said: ”A thalassaemia patient has to be given 250 millilitres of blood per kilogramme every year. | | | It points out that this test is not painful and its result is almost 90 per cent accurate. | | | They then explore all those methods of alternative treatment whose practitioners promise to eliminate the disease. |
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http://www.dawn.com/2002/10/22/local7.htm
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| | Psychological therapies for thalassaemia (Cochrane Review) |
| | However, from the information currently available, no conclusions can be made about the use of specific psychological therapies in thalassaemia. | | | In addition, psychological therapies seem appropriate to improving outcome and adherence to medical treatment. | | | This systematic review has clearly identified the need for well-designed, adequately-powered, multicentre, randomised controlled trials assessing the effectiveness of specific psychological interventions for thalassaemia. |
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http://www.update-software.com/abstracts/ab002890.htm
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| | U.K. Thalassaemia Society |
| | If this happens the child may develop medical problems associated with beta thalassaemia intermedia or beta thalassaemia major. | | | This is usually associated with considerable medical problems. | | | If this happens the child may develop medical problems associated with sickle haemoglobin. |
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http://www.ukts.org/pages/carrier.htm
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| | Lipids in Health and Disease Full text Distribution of serum lipids and lipoproteins in patients with beta ... |
| | However, quality and duration of life of transfusion-dependent thalassaemic patients has been transformed over the last few years, with their life expectancy increasing well into the third decade and beyond, with a good quality of life. | | | By the exception of triglycerides we also observed similar results regarding blood lipids levels among our patients and the healthy controls from the general population of Greece (based on the ATTICA study). | | | Moreover, the mean lipoprotein – (a) values in our sample were approximately 6 mg/dl among men and 8 mg/dl among women. |
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http://www.lipidworld.com/content/3/1/3
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| | Lohana Online |
| | There is no effective cure for Thalassaemia Major. | | | It is vital that awareness is raised about the disorder. | | | You can have the pregnancy tested and find out if the baby is affected. |
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http://www.lohanaonline.com/health/health2.asp
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| | Thalassaemia Society of Victoria Inc |
| | There is a chatroom for those interested in thalassaemia and its related conditions to discuss their questions and concerns. | | | We appreciate feedback and suggestions to help us continually work towards improving our services. | | | We will remedy this situation as soon as possible and apologise for any inconvenience. |
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http://www.tsv.org.au
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| | North of England Bone Marrow & Thalassemia Association |
| | The association also provides support for Thalassaemia sufferers in many other ways as detailed in our Support page. | | | The transplantation of bone marrow is the only treatment which offers the prospects of a cure if it is successful. | | | We promote the awareness of the disorder and help with research for Bone Marrow Transplantation. |
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http://www.cmmc.nhs.uk/nebata
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| | Thalassaemia Society of South Australia |
| | Blood is the gift of life especially for those with thalassaemia major and other haemoglobinopathies. | | | All donations go towards research, better patient care and to fund important awareness raising activities. | | | We hope your visit to our site broadens your awareness and understanding. |
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http://www.tssa.org.au
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| | CHC Nurses |
| | Although it is still in its experimental phase in its application to sickle cell disease pain, CBT is beginning to emerge as a therapeutic model which is likely to be viable and effective, provided clients can be encouraged to sustain their efforts to learn the method | | | Anionwu E N (2000) Review: Patient perceptions of crisis pain management in sickle cell disease: a cross cultural study Nursing Times Research 5 (3): 214 | | | Specialist Centres offer a range of resources which include information, literature, visual aids, advice, counselling, client support and screening services. |
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http://www.sickle-thalassaemia.org/CHCNurses.htm
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| | Christian News, Updated Daily - Christian Today > World Vision Pakistan Leads World Thalassaemia Day March |
| | According to World Vision, better health of children with Thalassaemia will enable them to attend school on a regular basis, experience improved quality of life and give them the opportunity of learning to manage the disease into their adult life. | | | A widespread education campaign on the prevention of Thalassaemia, Hepatitis and HIV/AIDS and adoption of safe reproductive health practices will be coupled with upgraded medical equipment and medicine to selected medical facilities, World Vision reports. | | | Children will obtain safe, free treatment, including desferal injections to prevent a dangerous increase of iron in the blood, which is a leading cause of clinical deterioration and often death in patients with severe forms of Thalassemia. |
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http://www.christiantoday.com/news/missions/world.vision.leads.world.thalassaemia.day.march.in.pakistan/356.htm
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| | Default |
| | To procure essential medical equipment like syringe desferal pump for Thalassaemia patients and they would to donate an affordable amount of money to STS so they would handle it with care. | | | To help to reduce the incidence of Thalassemia patients in Sabah. | | | Sabah Thalassaemia Society(STS) will strive for Thalassaemia patients to get the best and most satisfactory treatment. |
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http://www.sabah.org.my/scss/thala/default.htm
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| | Secondary Iron Overload -- Kushner et al. 2001 (1): 47 -- Hematology |
| | Growth and development in thalassaemia major patients with severe bone lesions due to desferrioxamine. | | | Liver injury due to iron overload in thalassemia: histopathologic and ultrastructural studies. | | | Prevention of heart disease by subcutaneous desferrioxamine in patients with thalassaemia major. |
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http://www.asheducationbook.org/cgi/content/full/2001/1/47
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| | Sarawak Thalassaemia Online: What is Thalassaemia |
| | As the general public is still largely ignorance of existence of thalassaemia, it is one of our objectives to spread more public awareness of this fatal blood disorder. | | | If a person has the thalassaemia trait, many of his or her relatives may also have it. | | | Many of them do not realise this as it does not cause them any illness. |
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http://www.thalassaemia.cdc.net.my/thalassaemia.html
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| | Alt NoFrames Thalassaemia HomePage |
| | A limited number of patients are provided with iron chelation therapy. | | | HBV immunisation is provided to all patients with thalassaemia since 1992. | | | -thalassaemia alleles in patients with thalassaemia in Malaysia |
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http://webcrawler.tripod.com/noframes3.htm
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| | Abnormal Laboratory Results - Screening for thalassaemia |
| | The identification of carriers of thalassaemia and other clinically significant haemoglobinopathies is a two-stage process. | | | Thalassaemias are common in Australia and are a significant public health problem. | | | The laboratory diagnosis of the thalassaemia carrier state is therefore of increasing importance both for antenatal diagnosis and for clinical management. |
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http://www.australianprescriber.com/magazines/vol24no5/abnormal.htm
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| | thalassaemia |
| | This is gradually replaced with the adult form of haemoglobin as the child develops.) If the body fails to produce enough of one type of globin chain then insufficient haemoglobin is made and the person becomes anaemic. | | | Thalassaemia is an inherited disorder of the blood. | | | The effect on someone’s life will depend on the type and degree of thalassaemia. |
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http://www.nurseminerva.co.uk/thalassa.htm
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| | Psychology web site of Sickle Central |
| | Our work involves the use of various psychological approaches to managing these problems. | | | People with sickle cell disease and thalassaemia may sometimes experience emotional or psychological problems. | | | In thalassaemia major other complications include growth retardation and bone deformation.Blood Transfusion is required to treat severe forms of thalassaemia and some complications of sickle cell disease. |
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http://www.sickle-psychology.com
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| | Drive to eradicate thalassaemia on in Saurashtra :: Gujarat Plus.com News |
| | Dr Mehta says obstetricians and paediatricians of the region should make it a point to screen their patients for thalassaemia in addition to other regular tests. | | | RAJKOT: Prevention is the only cure for thalassaemia. | | | The figure may be misleading considering the fact that many patients are carriers (thalassaemia minor) but unaware of their status. |
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http://www.gujaratplus.com/news/Rajkot/92776.html
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| | thalassaemia.ws: Forum |
| | for discussions on research or cure of Thalassaemia | | | Something that we all would like to discuss - the cure |
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http://www.thalassaemia.ws/forum.php
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| | Civil Hospital soon to have Thalassaemia ward: minister |
| | If we do not make our people aware of this disease, we will not be able to save our next generations," he said, adding: "Thalassaemia major is a certain death, which is caused when two Thalassaemia minor carriers marry each other. | | | "Every year, about six to seven thousands Thalassaemia major patients are born in the country, which presently has over one lakh such patients. | | | He said that he would also request the World Health Organisation to supply desferal injections to the NGOs involved in Thalassaemia control for free infusion to Thalassaemia major patients. |
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http://www.mqm.com/mqmpar/mqmparl030510.htm
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| | Search Results for thalassaemia - Encyclopædia Britannica |
| | The following major texts deal with the whole field of hematology, including the clinical, diagnostic, and therapeutic aspects: Vernon B. Mountcastle (ed.), Medical Physiology, 14th ed., 2 vol. | | | Overview of this organization providing support to patients suffering from Thalassaemia, a blood disorder. | | | Provides information on the disease, its link with malaria, diagnosis, and research developments. |
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http://www.britannica.com/search?query=thalassaemia&submit=Find&source=MWTEXT
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| | babyworld - your baby - special needs - thalassaemia |
| | babyworld - your baby - special needs - thalassaemia | | | However, even with treatment, the life expectancy of someone with the severe form of the condition may be only 20-30 years. | | | A severe form needs to be treated, though, or it will cause complications that may be fatal. |
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http://www.babyworld.co.uk/information/baby/special_needs/thalassaemia.asp
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| | Sheffield Sickle Cell & Thalassaemia Foundation |
| | Here you will find an introduction to us and to the variety of support structures that are currently in place for those with the condition and for their carers. | | | As the site cannot cover all aspects of the work of the foundation in detail, please contact us should you require further assistance. | | | Welcome to the Sheffield Sickle Cell and Thalassaemia Foundation web site. |
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http://www.sscatf-8m.com
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| | The Project: Sickle Cell & Thalassaemia Support Project Wolverhampton |
| | Having the trait is not an illness and this will not develop into the disorder. | | | Sickle cell and thalassaemia disorders are both blood disorders (haemoglobinopathies) affecting haemoglobin (the oxygen-carrying substance in red blood cells). | | | Thalassaemia is an inherited condition of the blood, which affects the production of haemoglobin - an oxygen-carrying substance that gives blood its red colour. |
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http://www.angelfire.com/sc3/wton/03_sicklecell.html
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| | Screening: Sickle Cell & Thalassaemia Support Project Wolverhampton |
| | Both Sickle Cell and Thalassaemia disorders exist in two forms; one is the disorder form and the other is the carrier form (trait). | | | Your parents or relatives may be healthy carriers, as this does not affect their health and well being they may be unaware of their carrier status. | | | The Sickle Cell and Thalassaemia Support Project also provides genetic counselling which enables individuals the opportunity to discuss their results and any implications it may have on the family. |
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http://www.angelfire.com/sc3/wton/13_screening_english.html
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| | City - No new thalassaemia cases in high-risk |
| | The body’s ability to produce haemoglobin is affected in a person who has thalassaemia. | | | He undergoes transfusions thrice a month and lives with the fear of contracting infections like hepatitis B or C. He also undergoes chelation therapy in which an injection is inserted into his body for eight to 10 hours a day and excess iron is removed. | | | City - No new thalassaemia cases in high-risk |
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http://web.mid-day.com/news/city/2003/march/48683.htm
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| | City - Marriage vow to fight thalassaemia |
| | He or she also have to undergo therapy to remove excess iron from the body. | | | The couple and Oza are also spreading awareness about thalassaemia in their circle. | | | Thalassaemia major and minor are hereditary disorders characterised by defective production of haemoglobin, which leads to decreased production and increased destruction of red blood cells. |
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http://web.mid-day.com/news/city/2002/december/38855.htm
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