|
| |
| | Marfan syndrome |
 | | Pectus excavatum is a malformation of the chest in which the patient's breastbone, or sternum, is sunken inward. | | | A few patients with Marfan may have a pectus excavatum on one side of their chest and a pectus carinatum on the other. | | | Marfan syndrome affects three major organ systems of the body: the heart and circulatory system, the bones and muscles, and the eyes. |
|
http://www.healthatoz.com/healthatoz/Atoz/ency/marfan_syndrome.jsp
(3509 words)
|
|
| |
| | Marfan Syndrome and Your Heart |
| | The goal of surgery for Marfan syndrome is to prevent aortic dissection or rupture and to treat problems affecting the heart's valves, which control the flow of blood in and out of the heart and between the heart's chambers. | | | People with Marfan syndrome who have heart or valve involvement or who have had heart surgery are at increased risk for bacterial endocarditis. | | | It is important to seek medical care from a physician who has experience in treating Marfan syndrome. |
|
http://www.webmd.com/content/pages/14/81967
(1682 words)
|
|
| |
| | Marfan's Syndrome- Health Encyclopedia and Reference |
| | A child with Marfan's syndrome should be checked regularly for curvature of the spine (scoliosis). | | | Children with Marfan's should have regular eye exams beginning at an early age because nearsightedness is a common condition. | | | Children with scoliosis should be referred to an orthopedic surgeon who may prescribe a removable brace to stabilize the spine. |
|
http://www.drkoop.com/encyclopedia/43/651.html
(682 words)
|
|
| |
| | Janis Cortese: Marfan Syndrome |
| | However, when I researched Marfan Syndrome more with the advent of the World Wide Web, I learned that this was simply not something that I could treat myself. | | | With Marfan, the muscles aren't able to tug as hard as they should at the skeleton, so the bones don't ever get stressed as much as they should. | | | Many doctors will not recognize it, and with the cardiac involvement that Marfan Syndrome often includes, that can be fatal. |
|
http://www.io.com/~cortese/marfan
(8556 words)
|
|
| |
| | Questions and Answers about Marfan Syndrome |
| | Since Marfan syndrome affects the long bones of the skeleton, arms, legs, fingers, and toes may be disproportionately long in relation to the rest of the body. | | | Scientists are approaching research on Marfan syndrome from a variety of perspectives. | | | As people with Marfan syndrome get older, the dura often weakens and stretches, then begins to weigh on the vertebrae in the lower spine and wear away the bone surrounding the spinal cord. |
|
http://www.niams.nih.gov/hi/topics/marfan/marfan.htm
(2503 words)
|
|
| |
| | Marfan Syndrome |
| | Heart and blood vessel problems pose the largest threat to a person with Marfan syndrome, which emphasizes the importance of regular evaluation by your child's physician. | | | This means that each offspring of an affected parent will have a 50 percent chance of also being born with the disorder. | | | Consult your child's physician for more information regarding the specific outlook for your child. |
|
http://www.healthsystem.virginia.edu/uvahealth/peds_cardiac/marfan.cfm
(1226 words)
|
|
| |
| | Medical References: Marfan Syndrome |
| | After any valve replacement surgery, the patient is given anti-clotting medication for life, because blood tends to clot when it comes in contact with artificial valves. | | | Fibrillin normally is especially abundant in the aorta, in the ligaments that hold the eye’s lens in place, and in bones. | | | Genetic counseling allows informed decisions about childbearing and will provide information on genetic testing as it becomes available to more families affected by Marfan syndrome. |
|
http://www.marchofdimes.com/professionals/681_1216.asp
(1538 words)
|
|
| |
| | Marfan Syndrome |
| | Isometric exercises (such as weight lifting or rowing) and contact sports in which a blow to the chest could occur (such as football or hockey) also may be off-limits. | | | As a result, many of these structures aren't as stiff as they should be. | | | Another problem that may occur if the aortic wall weakens is that an aneurysm (AN'u-rizm) may form. |
|
http://www.americanheart.org/presenter.jhtml?identifier=4672
(603 words)
|
|
| |
| | Marfan Syndrome / Family VillageLibrary |
| | They assist patients and their families to live optimally with Marfan Syndrome by forming self-help groups nationally, which will foster improved physical and emotional health and thus enable affected families to seek and follow the most comprehensive health care regime possible. | | | The Canadian Marfan Association provides accurate, timely information about Marfan Syndrome to help prevent early death and disability, and works to improve the quality of life for Marfan patients in Canada, through comprehensive programs of education, support, and research. | | | To provide a network of communications for patients and relatives to share experiences, support one another and improve their medical care. |
|
http://www.familyvillage.wisc.edu/lib_marf.htm
(295 words)
|
|
| |
| | eMedicine - Marfan Syndrome : Article by Harold Chen, MD, MS, FAAP, FACMG |
| | Family history and results of molecular studies are some of the major criteria, a fact that emphasizes the need to obtain a complete family history and pedigree. | | | Dural ectasia is defined as a ballooning or widening of the dural sac, often associated with herniation of the nerve root sleeves out of the associated foramina. | | | Medicine is a constantly changing science and not all therapies are clearly established. |
|
http://www.emedicine.com/PED/topic1372.htm
(5787 words)
|
|
| |
| | [No title] |
| | My Marfan’s hasn’t given me any more major trouble; I only get headaches and sore legs at times. | | | DISCLAIMER: None of the data or information mentioned or contained in this site is intended to be used or construed as a substitute for professional medical care and advice by your health practitioner. | | | I am sending a copy of this letter to Dr R. I have not arranged to see Tristan in this clinic again but we would he happy to see your family in the future. |
|
http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html
(2342 words)
|
|
| |
| | Marfan Syndrome |
| | This causes changes in many systems of the body, but especially the heart, eyes, and bones. | | | What Do Doctors Do?, What a Kid With Marfan Can Do, and What's Life Like for Kids With Marfan Syndrome? | | | The good news is that, even though Marfan syndrome has no cure, doctors can treat just about all of its symptoms. |
|
http://kidshealth.org/kid/health_problems/birth_defect/marfan.html
(448 words)
|
|
| |
| | MedlinePlus Medical Encyclopedia: Marfan syndrome |
| | Disorders of connective tissue affect the skeletal system, cardiovascular system, eyes, and skin. | | | Calling your health care provider Return to top | | | Marfan syndrome is an inheritable disorder of connective tissue, the tissue that strengthens the body's structures. |
|
http://www.nlm.nih.gov/medlineplus/ency/article/000418.htm
(676 words)
|
|
| |
| | Marfan syndrome - Wikipedia, the free encyclopedia |
| | As a result, regular checkups by a cardiologist are needed to monitor cardiovascular health. | | | Nearsightedness or myopia is a common condition associated with Marfan syndrome. | | | Genetic counseling is available for families who may be at risk for Marfan syndrome. |
|
http://en.wikipedia.org/wiki/Marfan_syndrome
(800 words)
|
|
| |
| | MARFAN SYNDROME : Contact a Family - for families with disabled children: information on rare syndromes and disorders |
| | This is an extract from The Contact a Family Directory which has information on hundreds of conditions affecting both children and adults. | | | The Association represents over 1,600 affected families offering "Support for Today With Tomorrow in Mind". | | | It offers support, advice and encouragement for patients and their families, undertakes meetings for patients and the many medical specialists associated with the care of a patient with Marfan Syndrome, and actively undertakes and participates in Marfan research. |
|
http://www.cafamily.org.uk/Direct/m15.html
(812 words)
|
|
| |
| | Marfan Syndrome: Hereditary Connective Tissue Disorders: Merck Manual Home Edition |
| | The weakening affects bones and joints as well as internal structures, such as the heart, blood vessels, eyes, and intestines. | | | A displaced lens or retina can usually be reattached surgically. | | | There is no cure for Marfan syndrome nor any way to correct the abnormalities in the connective tissue. |
|
http://www.merck.com/mrkshared/mmanual_home2/sec23/ch279/ch279c.jsp
(613 words)
|
|
| |
| | A forum for worldwide communication for Marfan Syndrome Organizations |
| | It is our hope that this website will facilitate communication between all people that are affected by the Marfan syndrome, international researchers, and medical professionals throughout the world. | | | Additionally, you can access our Search Page and our Feedback Page. | | | • Establish standards for diagnosis and treatment of the Marfan syndrome. |
|
http://www.marfanworld.org
(492 words)
|
|
| |
| | Marfan syndrome - Genetics Home Reference |
| | Nearly two-thirds of people with Marfan syndrome experience curvature of the spine (scoliosis) and have either a sunken or barrel chest. | | | Marfan syndrome is an inherited disorder of connective tissue, the tissue that provides support to structures of the body such as blood vessel walls, heart valves, and cartilage. | | | Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional. |
|
http://ghr.nlm.nih.gov/condition=marfansyndrome
(733 words)
|
|
| |
| | Children's Heart Institute What is Marfan Syndrome? |
| | Marfan Syndrome is a genetic disorder, which may affect; the heart and blood vessels (Cardiovascular System), Spine, Chest, and joints (Skeletal System) and the Eyes and their supporting tissue (Ocular System). | | | The heart abnormalities associated with this condition are however the most life-threatening and the most important to detect. | | | Eye slit lamp examination by an ophthalmologist, to determine if there is any lens dislocation. |
|
http://www.childrenheartinstitute.org/educate/marfan/marfan.htm
(144 words)
|
|
| |
| | Marfan Syndrome: Does Diet Play A Role? |
| | Occluded arteries have been documented in people taking heparin, and some researchers conclude that the drugs work no better than aspirin in preventing heart attacks. | | | Marfan syndrome, magnesium status and medical prevention of cardiovascular complications by hemodynamic treatments and antisense gene therapy. | | | As such, it would be highly logical to consider that in addition to genes and drugs, symptoms of Marfan syndrome, like symptoms of homocystinuria, may also be influenced by vitamin and/or dietary therapy. |
|
http://www.ctds.info/marfan.html
(1129 words)
|
|
| |
| | Home |
| | See your physician with any and all questions regarding your medical condition. | | | At this time there in no therapy or treatment to lessen deteriorating muscular and skeletal degeneration. | | | The associated orthopedic and opthalmological problems can cause severe handicapping including loss of mobility, chronic and debilitating pain and blindness. |
|
http://www.jrmarfan58.com
(189 words)
|
|
| |
| | Stanford University Marfan Center |
| | Our ultimate goal is to enable our patients to live long productive and fulfilling lives despite the limitations of these genetic disorders. | | | Prior to innovations in the medical and surgical management of this disease, most patients died of cardiovascular complications by the age of 50. | | | Toward that goal, the members of the center are working to understand how the type of mutation affects the clinical manifestations of Marfan syndrome, familial aortic disease and bicuspid aortic valve disease and on new surgical options such as valve sparing aortic root replacement surgery. |
|
http://marfan.stanford.edu
(483 words)
|
|
| |
| | Marfan syndrome - MayoClinic.com |
| | The disorder affects connective tissue — the fibers that provide the framework and support for your body. | | | Yet signs and symptoms of Marfan syndrome can vary greatly from person to person. | | | Marfan syndrome is serious, but advances in treatment have greatly improved the outlook for people with the disease. |
|
http://www.mayoclinic.com/health/marfan-syndrome/DS00540
(318 words)
|
|
| |
| | Marfan Life - Marfan-List email discussion group |
| | The information they share is primarily anecdotal and is based upon their own personal experience. | | | Subscribers may include patients with these connective-tissue disorders, family and friends of patients, researchers and health-care workers interested in the Marfan syndrome and related disorders, and anyone else wishing to know more about it. | | | Any person who suspects that he or she or a family member may have the Marfan syndrome, or that has specific questions about any aspects of the condition, should contact a competent medical professional or should contact the National Marfan Foundation, a voluntary health organization that provides information to affected persons and their families. |
|
http://www.marfanlife.net/lists
(465 words)
|
|
| |
| | Marfan syndrome |
| | This view of the mitral valve in a patient with Marfan's syndrome depicts a floppy mitral valve. | | | This mucin stain of the wall of the aorta demonstrates cystic medial necrosis, typical for Marfan's syndrome and causes the connective tissue weakness that explains the aortic dissection. | | | The hand at the left is that of a young woman with Marfan's syndrome, while the hand at the right is a normal male. |
|
http://medgen.genetics.utah.edu/photographs/pages/marfan_syndrome.htm
(164 words)
|
|
| |
| | The Marfan Syndrome |
| | Diagnosing the Marfan syndrome is difficult because the number and severity of symptoms affecting each person varies. | | | The doctor may first recognize that you demonstrate some symptoms of the disorder when treating you for a dislocated hip, kneecap, or jaw; groin pain due to a hernia; or spontaneous leakage of air from the lungs into the chest cavity. | | | The Marfan syndrome is an inherited, degenerative disorder of the connective tissue, which gives shape and structure to tissues in the body and holds them in place. |
|
http://www.hughston.com/hha/a_12_2_4.htm
(715 words)
|
|
| |
| | Marfan Life |
| | BREAKING NEWS: Blood Pressure Medication May Revolutionize Treatment of Marfan Syndrome | | | Marfan Syndrome is a genetic disorder that effects the connective tissue. | | | About 200,000 people in the United States have Marfan syndrome and related conditions such as the lesser-understood MASS." |
|
http://www.marfanlife.net
(1486 words)
|
|
| |
| | Marfan Syndrome News |
| | affects liver function and then reduces the effects of drugs such as blood pressure treatments (which Marfan patients use) | | | Marfan Matters – The Skin in Marfan Syndrome | | | The eyes can be affected in a number of ways in Marfan Syndrome. |
|
http://www.marfan.org.za/news.html
(364 words)
|
|
| |
| | Hardin MD : Marfan Syndrome / Marfan's Syndrome |
| | Hardin MD : Marfan Syndrome / Marfan's Syndrome | | | Interventional treatment methods in patients with Marfan Syndrome (Scroll down for Figures 1-8) | | | [merfan, pictures of marfan syndrome, marphan syndrome pictures, marfan disease pictures, marfan's disease, marfans syndrome, marfans disease, marfen syndrome, marfin syndrome][51266 |
|
http://www.lib.uiowa.edu/hardin/md/marfan.html
(127 words)
|
|
| |
| | The Marfan Syndrome MEDSTUDENTS-METABOLIC DISORDERS |
| | The Marfan syndrome must be distinguished from habitus marfanoid that occurs in other conditions that presents with similar characteristics of Marfan syndrome: 1) Congenital contractural arachnodactily: An inherited disorder that presents with joint contracture and arachnodactily but does not include lens or aortic abnormalities. | | | The Marfan syndrome is an inherited disorder of connective tissue. | | | Sometimes a ligamentous laxity similar to Ehler Danlos syndrome is observed. |
|
http://www.medstudents.com.br/metdis/metdis5.htm
(428 words)
|
|
| |
| | GeneReviews: Marfan Syndrome |
| | GeneReviews are expert-authored, peer-reviewed, current disease descriptions that apply genetic testing to the diagnosis, management, and genetic counseling of patients and families with specific inherited conditions. | | | Your browser does not support HTML frames so you must view Marfan Syndrome in a slightly less readable form. |
|
http://www.genetests.org/query?dz=marfan
(45 words)
|
|
| |
| | Marfan Syndrome Forum |
| | If you have Marfan Syndrome and might have had some minor or unusual medical condition that is apparently not related to Marfan Syndrome, let me know the specific area you would like me to research for you by sending me an E-mail. | | | I would like to hear from any of you that have Marfan Syndrome and learn how you live with it-your hobbies, interests, and accomplishments. | | | I have had Strabismus-that is a lazy eye which is a weak muscle and I had to wear a patch over my left eye. |
|
http://hometown.aol.com/bjthaler6/myhomepage
(452 words)
|
|
| |
| | Marfan Syndrome |
| | , includes Similar Disorders to Marfan Syndrome [Beals | | | Marfan Syndrome Survey, TYWChow, and Timing of Elective Aortic Root Replacement in the Marfan Syndrome: Computerized decision support |
|
http://www.kumc.edu/gec/support/marfan.html
(86 words)
|
|
| |
| | SAMSO Home |
| | can attend meetings to learn more about Marfan Syndrome, ask questions and meet other families with the disorder; | | | The South African Marfan Syndrome organisation is a registered nonprofit organisation for the benefit of those with Marfan Syndrome, their families and doctors in South Africa (and throughout Africa/Middle East). | | | Technical Information - contact SAMSO for catalogue of medical journal papers |
|
http://www.marfan.org.za
(367 words)
|
|
| |
| | The Canadian Marfan Association |
| | If you wish to contact us, please do so using any of the following methods: | | | Donations to the Canadian Marfan Association are always welcome |
|
http://www.marfan.ca
(32 words)
|
|
|
