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| | Service Standards © Haemophilia Alliance |
 | | Haemophilia is a life long disorder and the relationship between patients and their families and those who care for them is critical. | | | Haemophilia Centre physiotherapists - who offer a range of acute treatments for patients with active bleeding and are responsible for monitoring joint function and improving joints and muscles on a long term basis. | | | A home therapy programme for patients with severe haemophilia, including the administration of prophylactic therapy where appropriate. |
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http://www.haemophiliaalliance.org.uk/docs/standards.htm
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| | Treatment © Haemophilia Alliance |
| | Haemophilia centres will liaise with patients and their families on home therapy and will monitor the usage of coagulation factor concentrates. | | | Wherever appropriate, the care of patients with haemophilia and their families should be delivered in the home setting which will minimise absence from school and work and help patients to live more effectively with their life long bleeding disorder. | | | The clinical treatment of patients with haemophilia should take place in a dedicated clinical area which should be comfortable, quiet and appropriately equipped. |
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http://www.haemophiliaalliance.org.uk/docs/treatment.htm
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| | Invisible Illness - Haemophilia entry |
| | Haemophilia is a lifelong condition for which there is no cure. | | | People with haemophilia use a variety of pain management techniques including meditation, relaxation techniques and pain killers. | | | While the severity of haemophilia is a good guide, it is also important to remember that each individual's experience is unique. |
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http://www.chronicillness.org.au/invisible/haemophilia_a.htm
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| | The Haemophilia Society - HAEMOPHILIA: GENERAL INFORMATION |
| | Because haemophilia is a lifelong condition, it is important that you receive continued supervision by a specialist medical team at a comprehensive care centre. | | | The son cannot pass haemophilia on to future generations.However, in a third of all cases of haemophilia there is no previous history of the condition in the family. | | | Raising a child with Haemophilia; A practical guide for parents. |
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http://www.haemophilia.org.uk/publications/haemophilia_general.htm
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| | [No title] |
| | She had passed haemophilia to him, he got HIV from untreated cryo, she thought, as did many mothers of men affected by haemophilia, that she was responsible for his condition. | | | She learned about his condition and how he was affected by haemophilia. | | | The day after the baby was born the doctor who had delivered the child told Agatha the he had become aware that her husband had haemophilia and was HIV positive. |
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http://www.haemophilia-society.ie/files/Lindsay_Tribunal.doc
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| | Invisible Illness - Haemophilia entry |
| | Haemophilia does not affect a student's ability to learn or perform academically. | | | While haemophilia must be respected, it does not need to dominate life. | | | In fact, exercise is encouraged as it promotes healthy growth and development, and helps prevent bleeds. |
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http://www.chronicillness.org.au/invisible/haemophilia_b.htm
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| | HAEMOPHILIA: DIFFERENT TYPES OF BLEEDS |
| | Superficial bruising is common in haemophilia and is usually neither dangerous nor painful. | | | The person with haemophilia may experience bleeding problems in any part of the body at one time or another. | | | A programme of physiotherapy, as soon as the pain and swelling have subsided, is most important to maintain good joint movement and muscle tone, and will hasten the return to normal activities. |
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http://www.mydr.com.au/?article=2510
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| | Gene therapy to treat haemophilia - Cure achieved in dogs - are humans next? |
| | She hopes that the problems may be overcome in the next five years to develop a successful gene transfer approach for sufferers of haemophilia. | | | Gene therapy has been used to successfully treat haemophilia in dogs. | | | A leading researcher from Philadelphia USA, Professor Katherine High, is examining the obstacles to successful gene therapy in human patients with haemophilia. |
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http://www.medicalnewstoday.com/medicalnews.php?newsid=28922&nfid=rssfeeds
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| | OHC : The history of haemophilia |
| | Organisation of haemophilia care in the UK Developments in organisation in haemophilia care have also contributed to the overall improvement in quality of life for people with haemophilia. | | | A scheme for the interaction of the various factors in a coagulation pathway was independently devised by two groups shortly thereafter. | | | However, a lack of understanding of blood groups and basic transfusion methods hindered further development at the time. |
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http://www.medicine.ox.ac.uk/ohc/history.htm
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| | Inclusive Technology - Information - Articles - Haemophilia |
| | Parents will tell you who should be contacted in the event of a bleed and give you general information of the child's condition. | | | Should any of these occur, the child's parents or guardians should be contacted and arrangements made to take the child to the Haemophilia Centre immediately. | | | In rare and exceptional circumstances a child with a severe condition may need to have a statement of needs issued. |
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http://www.inclusive.co.uk/infosite/haemoph.shtml
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| | 2CCC 96.3 FM - Haemophilia |
| | All products are infused intravenously (as with a blood transfusion) either at the Haemophilia Centre or at home by parents trained to treat their child, or by the person himself when he is confident enough to do so. | | | Tubby and David are joined by Mother and Haemophiliac Advocate Heidi for a look at how life is in a family where one healthy active child has this condition of Haemophilia. | | | Over a period of time, bleeding into joints and muscles can cause permanent damage (such as arthritis in the joints) and chronic pain. |
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http://www.tac.com.au/~twoccc/healthwise/haemophilia.html
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| | HAEMOPHILIA, VON WILLEBRAND SYNDROME and other coagulation defects: Contact a Family - for families with disabled ... |
| | Prenatal diagnosis for haemophilia can be performed by a number of techniques from about ten weeks of pregnancy and modern genetics has given parents increasing choice for those who wish to exercise it. | | | Easy bruising and bleeding after injury or surgery can occur in any of the disorders described above unless effective treatment is given. | | | Genetic counselling is available at Comprehensive Care Centres and Haemophilia Society publications also give useful information. |
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http://www.cafamily.org.uk/Direct/h18.html
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| | Novo Nordisk India - Facts about haemophilia |
| | The incidence of inhibitors complicating treatment of haemophilia A and B is approximately 30% in haemophilia A and 3 to 5% in haemophilia B patients. | | | The management of haemophilia patients with inhibitors is difficult. | | | Haemophilia is a congenital bleeding disorder that affects males. |
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http://www.novonordisk.co.in/documents/article_page/document/Facts_Haemop.asp
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| | Haemophilia B : BPL (Bio Products Laboratory) |
| | A comprehensive guide designed to answer your questions and offer reassurance that, in many cases, carriers of haemophilia can be helped and supported and the condition treated. | | | Mild or Moderate Haemophilia - How will it affect my life? | | | A comprehensive guide to treatment centres and services for patients with bleeding disorders in the United Kingdom. |
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http://www.bpl.co.uk/public/therapy_areas/coagulation/haemophilia_b.asp
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| | CENTRAL HAEMOPHILIA FOUNDATION NEWSLETTER OCTOBER 1999 |
| | The Haemophilia Clinic is closed for full assessments during December. | | | He also suggested how we could improve or start care in the areas in which we live. | | | He has been in the chair through many changes in availability and type of treatment to People with Haemophilia. |
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http://www.haemophilia.org.za/CRegionnews.html
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| | © The Centre for Genetics Education |
| | Genetic counselling (see Genetics Fact Sheet 5) can provide the most current information regarding these conditions and any tests which might be appropriate. | | | Less commonly, bleeding into muscles or internal organs can occur. | | | Haemophilia is a genetic condition that causes people to keep on bleeding for a long time unless treated. |
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http://www.genetics.com.au/factsheet/38.htm
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| | ScienceDaily: Promising Therapies For Haemophilia & Heart Disease |
| | Gene Therapy To Treat Haemophilia; Cure Achieved In Dogs -- Are Humans Next? | | | University Of Pittsburgh Medical Center Discharges Its First Patient With Permanent Artificial Heart (July 21, 2004) -- The University of Pittsburgh Medical Center (UPMC) is discharging its first patient who was successfully implanted, on July 2, with the Heartmate XVE Left Ventricular Assist System (LVAS). | | | ScienceDaily: Promising Therapies For Haemophilia & Heart Disease |
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http://www.sciencedaily.com/releases/2005/08/050810135052.htm
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| | Haemophilia - Wikipedia, the free encyclopedia |
| | It might therefore present visibly as skin bruises, or subtly as melena, hematuria, or bleeding in the brain. | | | Haemophilia or hemophilia is the name of any of several hereditary genetic illnesses that impair the body's ability to control bleeding. | | | If a patient becomes refractory to replacement coagulation factor as a result of circulating inhibitors, this may be overcome with recombinant human factor VII (NovoSeven®), which is registered for this indication in many countries. |
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http://en.wikipedia.org/wiki/Haemophilia
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| | BBC News HEALTH Genetics work eases haemophilia |
| | The team, led by Dr David Roth, director of haemophilia research at the Beth Israel Deaconess Medical Centre, said the test has been carried out on another six patients, but that these results are not ready. | | | The haemophilia community have a strong interest in any new forms of treatment which avoid the invasive methods of treatment which are currently available. | | | Haemophilia affects one in 5,000 US males and in 60% of these the disease is so severe that spontaneous bleeding occurs in joints, soft tissues and vital organs. |
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http://news.bbc.co.uk/hi/english/health/newsid_1373000/1373901.stm
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| | Learn about Haemophilia |
| | The defect lies in the clotting mechanism of the blood and is characterised by a life long tendency to excessive internal or external haemorrhage. | | | What is Haemophilia - Symptoms - Consequences - Treatment - Cost of Treatment | | | Fatimid Foundation shoulders the responsibility of treating around 3000 registered haemophiliac patients free of charge and therefore requires substantial government support to subsidise this cost. |
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http://fatimid.org/haemophilia.htm
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| | Breathofair - Haemophilia - About Haemophilia |
| | The main problem for people with Haemophilia is bleeding internally, mainly into muscles and joints. | | | About 6,000 people are affected with Haemophilia in the UK. | | | Haemophilia is a lifelong inherited genetic condition, which affects females as carriers and males who inherit the condition. |
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http://www.breathofair.co.uk/haemophilia/about.asp
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| | BBC NEWS Health Haemophilia treatment hope |
| | Researcher Dr Hengjun Chao of the University of North Carolina School of Medicine, said: "If the technology is proven effective in humans, it would provide a more permanent treatment for haemophilia A." | | | Previous attempts to develop a gene therapy treatment have floundered. | | | Haemophilia A, the most common form of the disorder, affects up to one in 5,000 baby boys. |
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http://news.bbc.co.uk/hi/english/health/newsid_2030000/2030051.stm
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| | BloodGivers.com --- Blood Disorders - Haemophilia |
| | This is why Haemophilia is called an X-linked genetic condition. | | | Haemophilia patients can experience spontaneous bleeding usually into the joints. | | | There is a rare and more severe type where some of the symptoms and aspects of its treatment are similar to those of severe haemophilia. |
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http://www.bloodgivers.com/haemophilia.asp
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| | BBC - Health - Conditions - Haemophilia |
| | Genetic counselling and antenatal screening of families with haemophilia is an opportunity to prevent these diseases being passed on to children. | | | There's no cure for haemophilia and, although patients are treated with injections of the missing clotting factor, there's no permanent way of replacing or increasing its level. | | | Haemophiliacs may receive medication, such as desmopressin, to try to raise the levels of the missing clotting factors, especially prior to planned surgery or dentistry, or they may receive factor concentrate. |
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http://www.bbc.co.uk/health/conditions/haemophilia1.shtml
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| | Haemophilia |
| | This can lead to chronic pain and arthritis. | | | Haemophilia is an inherited condition that affects mainly males | | | This means haemophilia can occur in any family. |
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http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Haemophilia?OpenDocument
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| | Bayer Biological Products EU - About Haemophilia |
| | Significant investments in professional organizations, societies, and congresses, demonstrate the Bayer BP commitment to those who research, treat, and provide care for haemophilia patients. | | | These therapeutic products are derived from human blood plasma and infused in patients with haemophilia to prevent uncontrolled bleeding. | | | Today, in partnership with Avigen, Inc., Bayer BP is conducting research on the application of gene therapy to the treatment of haemophilia B. For more information about haemophilia, visit the World Federation of Hemophilia website. |
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http://www.biological.com/abouthaemophilia.cfm
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| | Medcyclopaedia - Haemophilia |
| | There is an erosion on the medial aspect of the distal humeral condyle, and an effusion between the radius and ulna, extending into the elbow joint. | | | Clinical manifestations are related to bleeding which may occur in any body system. | | | MRI of elbow of a boy with haemophilia, which is generally well controlled. |
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http://www.medcyclopaedia.com/library/topics/volume_vii/h/HAEMOPHILIA.aspx
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| | South African Haemophilia Foundation |
| | These web pages are part of our commitment to promote the welfare of all persons with haemophilia and similar conditions in | | | Haemophilia Foundation by e-mail, or write to us at | | | We hope it will help provide a better understanding of this inherited, lifelong bleeding disorder which affects males almost exclusively. |
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http://www.haemophilia.org.za
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| | Haemostasis Forum |
| | This is a web site dedicated to supplying information on haemophilia to medical and health care professionals, providing an excellent opportunity to interact with worldwide specialists in the field of haematology. | | | This forum is supported by an educational grant from Novo Nordisk A/S. If you would like to access this site, please click on 'Register Now' and submit your details. | | | Each month the contents of these pages are updated and reviewed by a panel of independent haemophilia specialists. |
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http://www.haemophilia-forum.org
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| | Haemophilia/Hemophilia Chat |
| | even though we knew about the haemophilia it was still a shock when we found out that our son has it, but it hasn't changed our life much, except for the wonderful people we have met through it. | | | And i've been waiting for ages for someone to open a chatroom/group on msn, so i decided to do it myself. | | | I'm the mother of a six year old boy with severe haemophilia a. |
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http://groups.msn.com/HaemophiliaHemophiliaChat
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| | North Hampshire Haemophilia Centre - Lord Mayor Treloar Orthopaedic Hospital |
| | The team prides itself on their holistic approach to managing patients and the personally directed care and support they provide. | | | The numbers of haemophiliacs continued to increase, enabling Dr. Aronstam and his team to carry out important research into haemophilia, its effect on joints, and its treatment. | | | Many of the patients have grown up with the Centre, being treated firstly at Treloar Haemophilia Centre and now at Uplands House. |
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http://www.hants.gov.uk/nmhha/haemo/lmtc.html
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| | OUP: Living with Haemophilia (5/e): Jones |
| | It takes a positive approach to physical development and encourages the pursuit of healthy, active and fruitful living. | | | It explains the inheritance of haemophilia, bleeding episodes and how to control them, safe treatment including home therapy and prophylaxis, and the prospects for a genetic cure. | | | He has worked with those affected by it for over 30 years and this book contains his wealth of experience. |
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http://www.oup.co.uk/isbn/0-19-263229-9
(449 words)
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| | The Open Door Web Site : IB Biology : Genetics : Blood Clotting and Haemophilia |
| | Haemophiliacs do clot their blood slowly because their is an alternative pathway via thromboplastin. | | | About 85% of haemophiliacs suffer from classic haemophilia (1 male in 10 000). | | | In classic haemophilia Factor VIII cannot be produced and in Christmas disease (another form of haemophilia), Factor IX is absent. |
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http://www.saburchill.com/IBbiology/chapters03/015.html
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| | Haemophilia Foundation Australia // Welcome to Haemophilia Foundation |
| | We are committed to improving treatment and care through | | | Haemophilia Foundation Australia (HFA) represents people with haemophilia, von Willebrand disorder and other related bleeding disorders and their families. | | | As a National Member Organisation of the World Federation of Hemophilia, HFA participates in international efforts to improve access to care and treatment for people with bleeding disorders around the world. |
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http://www.haemophilia.org.au
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| | Haemophilia B - Wikipedia, the free encyclopedia |
| | Christmas disease: a condition previously mistaken for haemophilia. | | | It is the second most common form of haemophilia, rarer than haemophilia A. | | | Haemophilia B (also spelled Hemophilia B or Hæmophilia B) is a blood clotting disorder caused by a mutation of the Factor IX gene. |
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http://en.wikipedia.org/wiki/Hemophilia_B
(208 words)
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| | [No title] |
| | About 6,000 people are affected with haemophilia in the UK. | | | Haemophilia B is much less common, occurring in about 1 in 30,000. | | | There are different kinds of mutations, some having a more serious effect on the structure of the protein than do others. |
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http://www.nhsdirect.nhs.uk/he.asp?articleID=183
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| | Inclusive Technology - Useful Websites & Contacts - The Haemophilia Society |
| | Haemophilia is a condition that occurs worldwide and affects all racial groups. | | | "The Haemophilia Society is working to secure the best possible care, treatment and support for people with haemophilia and their families". | | | The WFH was created in 1963 and its mission is to promote and advance services and care worldwide to persons with haemophilia and related bleeding disorders. |
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http://www.inclusive.co.uk/support/haemsoc.shtml
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| | haemophilia - Hutchinson encyclopedia article about haemophilia |
| | The sufferer experiences prolonged bleeding from the slightest wound, as well as painful internal bleeding without apparent cause. | | | Shortly after, the UK government introduced it for patients under 16, to remove the risk of contracting Creutzfeldt-Jakob disease (CJD) from blood products. | | | Males affected by the most common form are unable to synthesize Factor VIII, a protein involved in the clotting of blood. |
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http://encyclopedia.farlex.com/haemophilia
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| | Novo Nordisk Australasia - Haemophilia |
| | It is usually seen in older people, but has been associated with a wide variety of conditions, such as rheumatoid arthritis, pregnancy and as a reaction to certain drugs. | | | Without these clotting factors, bleeding will continue until treatment is given because the body is not able to produce sufficient natural clotting factors to form a clot to stop it. | | | The normal treatment for haemophilia is to replace the missing clotting factor. |
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http://www.novonordisk.com.au/documents/article_page/document/Haemophilia.asp
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| | Medcyclopaedia - Haemophilia |
| | Bone scans are more sensitive than clinical and radiological evaluations in patients with haemophilic arthropathy but lack specificity. | | | classic haemophilia (haemophilia A), characterized by a functional deficiency of factor VIII; and | | | Other abnormalities occurring in haemophilia include osteonecrosis, with epiphyseal fragmentation and collapse; ectopic ossification; and fractures, which may result from the presence of osteoporosis, joint contracture and muscle imbalance in this disease. |
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http://www.medcyclopaedia.com/library/topics/volume_iii_1/h/HAEMOPHILIA.aspx
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| | Welcome |
| | The Haemophilia Society is working for people with haemophilia, von Willebrand's or a related bleeding disorder and their families to secure the best possible care, treatment and support. | | | We also provide services for people with haemophilia affected by HIV and hepatitis C.The Haemophilia Society has a strict confidentiality policy and is committed to equal opportunities. | | | We provide information, advice and support services and we advocate and campaign to secure the best possible care and treatment. |
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http://www.haemophilia.org.uk
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| | REVIEW of Haemophilia A Molecular Pathology |
| | Over the last decade there has been a dramatic increase in our understanding of the pathology of haemophilia A in molecular terms, at the levels both of nucleic acid sequence and to a much lesser extent, protein structure. | | | The results from genetic analysis of nearly 2000 individual DNA samples from haemophilia A patients are summarised in a mutation database first published in 1991, updated in 1994 (Tuddenham et al 1994) and 1996, and now available online at this World Wide Web site. | | | A recent study (Antonarakis et al, 1995b) determined that of the two common types of inversion, the distal F8A copy is responsible for 35% of severe haemophilia A cases, while crossover with the proximal copy results in a further 7% of cases. |
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http://europium.csc.mrc.ac.uk/WebPages/Database/Review/Review_txt.html
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| | Home |
| | 15th March: Australian research suggests gene therapy can be used to treat haemophilia | | | Look out for the next issue in May | | | 12th December: Government to fund PGD for couples affected by haemophilia |
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http://www.haemophilia.org.nz
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| | HAEMOPHILIA - LoveToKnow Article on HAEMOPHILIA |
| | It is always from the smallest vessels that the blood escapes, and may do so in such quantities as to cause death in a few hours. | | | To properly cite this HAEMOPHILIA article in your work, copy the complete reference below: |
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http://www.1911ency.org/H/HA/HAEMOPHILIA.htm
(144 words)
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| | The Haemophilia Society, Bristol and South West Group |
| | This site contains information about haemophilia and about our group, and details of how to contact us. | | | To date, the meetings have been very successful and well-attended. | | | See the Bulletins page for news and other information. |
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http://haemswest.tripod.com
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| | Haemophilia Society of Singapore |
| | SGH Haemophilia Treatment Centre is now closed on Saturdays | | | If you are an adult seeking treatment, please proceed to the Accident and Emergency Department at Singapore General Hospital or National University Hospital. |
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http://www.haemophilia.org.sg
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