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| | Open Directory - Health: Conditions and Diseases: Genetic Disorders: Cystic Fibrosis |
 | | Cystic Fibrosis Western Australia - Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support. | | | Cystic Fibrosis Medicine - Provides free information to professionals involved with the treatment of cystic fibrosis. | | | Cystic Fibrosis Resource Centre - A source of information for cystic fibrosis patients, parents, doctors and other carers. |
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http://dmoz.org/Health/Conditions_and_Diseases/Genetic_Disorders/Cystic_Fibrosis
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| | Cystic Fibrosis-Reaching Out Foundation - Cystic Fibrosis Support and Information |
| | Cystic Fibrosis (CF) is the most common, fatal hereditary disease in the U.S. CF is a disorder of the cells that line the lungs, small intestines, sweat glands and pancreas. | | | The Cystic Fibrosis-Reaching Out Foundation, Inc. was formed because a CF Adult recognized a need among CF patients and families for information and support. | | | After watching many of her friends die and having observed diminished quality of life during their illness, she realized there is much work to be done while waiting on a cure. |
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http://reachingoutfoundation.org
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| | Pulmonary Medicine at UNC - Cystic Fibrosis Center |
| | The UNC Cystic Fibrosis Pulmonary Research and Treatment Center is a large, multidisciplinary group focused on the pathogenesis and therapy of cystic fibrosis and other lung diseases. | | | The Cystic Fibrosis Foundation: A non-profit US organization working to cure CF and help patients suffering from the disease | | | For inquiries into the pediatric CF clinic please visit their web page http://pediatrics.med.unc.edu, the UNC Cystic Fibrosis Care Center, or call 919-966-1055. |
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http://www.med.unc.edu/wrkunits/3ctrpgm/cystfib/CFcent.htm
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| | Reference.com/Encyclopedia/Cystic fibrosis |
| | Cystic fibrosis (CF) was first described as a disease in the late 1930s. | | | The high incidence of this lethal gene can be explained by the fact that CF carriers, who don't show any symptoms, enjoy some protection against cholera, since the extreme water loss in the intestines is prevented. | | | Recent medical research at the Cystic Fibrosis Foundation |
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http://www.reference.com/browse/wiki/Cystic_fibrosis
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| | [No title] |
| | Hodson ME: Aerosolized dornase alfa (rhDNase) for therapy of cystic fibrosis. | | | Advances in diagnosis and clinical care, largely related to the coordination of research and patient care by the Cystic Fibrosis Foundation, have led to a tripling of median life expectancy since 1960. | | | Cropp GJ: Effectiveness of bronchodilators in cystic fibrosis. |
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http://www.childsdoc.org/fall97/cf/cf.asp
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| | Cystic Fibrosis |
| | Cystic fibrosis (CF) is a cruel and deadly disease affecting the respiratory system, digestive system, endocrine system, and reproductive system. | | | Hodson ME. Aerosolized Dornase Alfa (rhDNase) for therapy of cystic fibrosis. | | | Carnitine metabolites in infants with cystic fibrosis: a prospective study. |
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http://www.thorne.com/altmedrev/fulltext/cystic.html
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| | Cystic Fibrosis Information |
| | Cystic Fibrosis Foundation:The Cystic Fibrosis Foundation (CFF) was established in 1955 to raise money for research to find a cure for cystic fibrosis (CF) and to improve the quality of life for the 30,000 children and young adults with CF. | | | CFRI Research:CFRI's mission is to fund cystic fibrosis research and to offer educational and support programs for people with CF and their families. | | | The Foundation works to heighten awareness of cystic fibrosis and to provide a better quality of life for those affected by cystic fibrosis. |
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http://pw2.netcom.com/~yourman/webdoc1.htm#what
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| | Cystic fibrosis |
| | Cystic Fibrosis: A Guide for Patient and Family. | | | That median age is expected to grow as new treatments are developed, and it is estimated that a person born in 1998 with CF has a median expected life span of 40 years. | | | Because of better and earlier treatment, a person born today with CF is expected, on average, to live to age 40. |
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http://www.healthatoz.com/healthatoz/Atoz/ency/cystic_fibrosis.jsp
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| | MedlinePlus Medical Encyclopedia: Cystic fibrosis |
| | Research has shown that the pain reliever ibuprofen may slow lung deterioration in some children with cystic fibrosis. | | | There is no way to prevent cystic fibrosis. | | | An early diagnosis of CF and a comprehensive treatment plan can improve both survival and quality of life. |
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http://www.nlm.nih.gov/medlineplus/ency/article/000107.htm
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| | Cystic Fibrosis- Health Encyclopedia and Reference |
| | The average lifespan of a person affected with CF is between 28 and 30 years of age. | | | However, pregnancy may impose a life-threatening burden on a pregnant woman with CF who has severe lung impairment. | | | You should promptly seek professional medical care if you have any concern about your health, and you should always consult your physician before starting a fitness regimen. |
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http://www.drkoop.com/encyclopedia/43/222.html
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| | Cystic Fibrosis |
| | While still in her pajamas, her parents clap her back and chest for at least 20 minutes to help clear her lungs of the thick mucus that sometimes makes it difficult for her to breathe. | | | Every day when she wakes up, Lisa begins to deal with a condition she's known all her life - cystic fibrosis (say: sis-tik fi-bro-sus). | | | The good news is that newer medicines are more effective and help kids with CF recover more quickly. |
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http://kidshealth.org/kid/health_problems/heart/cystic_fibrosis.html
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| | Cystic Fibrosis 101 |
| | Covering all major aspects of cystic fibrosis (CF), this reference provides a conceptual framework for understanding the disease--with particular emphasis on the lung. | | | University of Oxford, U.K. Third edition of a concise text for the patient with cystic fibrosis, families, and care givers. | | | The authors explain what CF is, how it is transmitted, and how it affects those who have it, paying particular attention to the respiratory and digestive problems it can cause. |
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http://pages.infinit.net/souriane/cf/home.htm
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| | genome.gov Learning About Cystic Fibrosis |
| | Since CF cannot be treated before birth, the purpose of prenatal testing is to prepare parents to care for a baby with special health needs, or to make a decision about terminating the pregnancy. | | | Genetic Research May Lead to New Drugs to Treat Cystic Fibrosis | | | Another research breakthrough offers a promising approach to treating cystic fibrosis. |
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http://www.genome.gov/10001213
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| | Cystic Fibrosis / Family Village |
| | The The Cystic Fibrosis Foundation (CFF) was established in 1955 to raise money for research to find a cure for Cystic Fibrosis (CF) and to improve the quality of life for the 30,000 children and young adults with the disease. | | | Through its research and clinical programmes, the Foundation helps to provide outstanding care for affected individuals, while pursuing the quest of a cure or control for the disease. | | | The Foundation provides information and training for scientific and health care personnel and distributes educational material for patients, families, and the general public regarding CF. |
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http://www.familyvillage.wisc.edu/lib_cysf.htm
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| | Biospace.com |
| | Inhaled hypertonic saline "is an inexpensive, safe, additional therapy in patients with cystic fibrosis," Bye's team concludes. | | | On that basis, Dr. Peter T. Bye from the University of Sydney and colleagues in Australia conducted a 48-week study in which 162 patients were randomized to treatment with 7-percent saline or 0.9-percent (normal) saline. | | | CFFT is the nonprofit drug discovery and development affiliate of the Cystic Fibrosis Foundation. |
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http://www.biospace.com/news_rxtarget.aspx?RxTargetID=63
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| | Cystic Fibrosis Carrier Testing: The Decision is Yours |
| | Cystic fibrosis does not affect intelligence or appearance. | | | his booklet was prepared to give you information about cystic fibrosis (CF) and CF carrier testing. | | | You could be a carrier of CF even if no one in your family has CF and even if you already have children without CF. |
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http://www.acog.org/from_home/wellness/cf001.htm
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| | Cystic Fibrosis New Zealand |
| | The goal of the Association is to ensure increased life expectancy for people with cystic fibrosis and improved quality of life for them and their families; and through research to achieve better control and ultimate cure for the illness. | | | The Cystic Fibrosis Association needs your help to conduct its vital family support, education, information and research services. | | | "Our aims are two-fold - Firstly we are committed to working toward a cure for Cystic Fibrosis by funding research and assisting in bringing together research teams and ideas in order to find the cure that we know is out there. |
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http://www.cfnz.org.nz
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| | Cystic Fibrosis Trust: Aiming to understand, treat and cure Cystic Fibrosis |
| | It funds research to treat and cure CF and aims to ensure appropriate clinical care and support for people with Cystic Fibrosis. | | | This treatment is already used by many people with CF in the UK; although the recent trial, reported in the New England Journal of Medicine, has confirmed the value of hypertonic saline solution in improving sputum clearance in people with CF. | | | A lot of people are beginning to be concerned about bird flu, and how it will affect those with Cystic Fibrosis. |
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http://www.cftrust.org.uk
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| | CYSTIC FIBROSIS |
| | Cystic fibrosis is often treated at home with antibiotics, special exercises for draining of sputum-including physical therapy for the chest, physical exercise, and aerosols-as well as diet therapy, which emphasizes the replacement of deficient digestive enzymes. | | | Sometimes, because of the air that is chronically trapped in the chest, the child gets a barrel-chested appearance. | | | Scientists have recently isolated the gene responsible for cystic fibrosis and have begun developing treatment techniques that will repair the genetic defect in a patient's lung tissue. |
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http://www.columbiasurgery.org/divisions/cardiothoracic/dd_cystic_faq.html
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| | MedlinePlus: Cystic Fibrosis |
| | Hypertonic Saline Therapy for Cystic Fibrosis: Is It Right for You? | | | Update on Antioxidant Therapies for CF (11/01/2005, Cystic Fibrosis Foundation) - Links to PDF | | | Ibuprofen: Information for Patients and Families (Cystic Fibrosis Foundation) - Links to PDF |
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http://www.nlm.nih.gov/medlineplus/cysticfibrosis.html
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| | eMedicine - Cystic Fibrosis : Article by Girish Sharma, MD |
| | In patients with advanced disease, extensive lung changes with fibrosis are reflected as restrictive changes characterized by declining TLC and vital capacity. | | | Sharma GD, Doershuk CF, Stern RC: Erosion of the wall of the frontal sinus caused by mucopyocele in cystic fibrosis. | | | Medicine is a constantly changing science and not all therapies are clearly established. |
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http://www.emedicine.com/ped/topic535.htm
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| | Cystic Fibrosis (CF) Fact Sheet - American Lung Association site |
| | For more information contact either the American Lung Association at 1-800-LUNG-USA (1-800-586-4872) or the Cystic Fibrosis Foundation at (800) FIGHT CF or www.cff.org. | | | The information contained in this American Lung Association® web site is not a substitute for medical advice or treatment, and the American Lung Association recommends consultation with your doctor or health care professional. | | | Cystic Fibrosis (CF) Fact Sheet - American Lung Association site |
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http://www.lungusa.org/site/pp.asp?c=dvLUK9O0E&b=35042
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| | Cystic fibrosis |
| | The respiratory problems associated with cystic fibrosis can be reduced by daily therapy involving a parent of carer drumming on the back and chest of the patient to loosen the mucus and help clear it from the lungs. | | | A mucus-thinning drug can also be used if necessary. | | | Although there is no cure for the disease, appropriate clinical management in the form of physiotherapy, antibiotic treatment and a supplemented diet allows most patients to live well into their 30s. |
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http://genome.wellcome.ac.uk/doc_wtd020856.html
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| | Medical References: Cystic Fibrosis |
| | A number of new drugs that aim to prevent or treat infections in those with CF are currently being tested. | | | Someone with a family history of CF is more likely to carry a CF gene than someone from an unaffected family. | | | Our mission is to improve the health of babies by preventing birth defects and infant mortality. |
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http://www.marchofdimes.com/professionals/681_1213.asp
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| | BUBL LINK: Cystic fibrosis |
| | The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. | | | Includes chronic bronchitis and emphysema, cystic fibrosis, influenza, lung cancer and tuberculosis. | | | Subjects: bronchitis, cystic fibrosis, influenza, lung cancer, lungs, pneumonia, tuberculosis |
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http://bubl.ac.uk/link/c/cysticfibrosis.htm
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| | Barnes-Jewish Hospital - Cystic Fibrosis |
| | That’s why Barnes-Jewish Hospital began the Adult Cystic Fibrosis program, as a complement to the excellent pediatric CF program at St. Louis Children’s Hospital, to treat patients with the latest therapies and improve their quality of life. | | | Directed by world-renowned pulmonologists, the Adult Cystic Fibrosis team at Barnes-Jewish Hospital uses an approach to treatment that brings together a specialized team including nurses, dietitians, social workers and counselors. | | | As Cystic Fibrosis patients mature, their medical, social, emotional and nutritional needs change. |
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http://www.barnesjewish.org/groups?NavID=338
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| | USD - Cystic Fibrosis Home Page |
| | The Cystic Fibrosis Foundation assures the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. | | | The adult CF team takes care of approximately 20 patients with Cystic Fibrosis, with ages ranging from 18 to 58 years. | | | The pediatric CF team provides care for children from just a few months of age up to about 18 years of age. |
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http://www.usd.edu/med/sdcfc
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| | EUROPEAN CYSTIC FIBROSIS SOCIETY |
| | Membership of the society is open to any clinician or scientist actively engaged in CF research or CF care. | | | Mission Statement: The ECFS aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis | | | Invitation to participate in a Pan European study on Pancreatitis in CF: Prevalence and Outcome |
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http://www.ecfsoc.org
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| | Johns Hopkins Children's Center: Specialties |
| | The Cystic Fibrosis Research Development Center is dedicated to the study and treatment of cystic fibrosis. | | | The 18-year-old division's goal has always been the same: to provide comprehensive medical care to children with lung disease. | | | Comprehensive evaluation and management of patients with cystic fibrosis |
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http://www.hopkinschildrens.org/specialties/aboutus.cfm?specialtyID=22
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| | What Is Cystic Fibrosis? - HealingWell.com |
| | And although a cure for CF through gene therapy may not be available in the immediate future, the promise of gene therapy is great and offers hope for thousands of CF patients. | | | We subscribe to the HONcode principles of the Health On the Net Foundation | | | Since the 1989 identification of the gene which is altered in CF, the pace of basic research has increased rapidly, and scientists hope to translate new knowledge about the molecular basis of the disease to new therapies to improve the lives of patients with this genetic disease. |
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http://www.healingwell.com/library/cysticfibrosis/info1.asp
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| | Cystic Fibrosis Resource Center - HealingWell.com |
| | Questions and answers about the symptoms of CF and what you should do if you suspect your child may have Cystic Fibrosis. | | | Find medical journal articles, news, and wire releases on clinical and healthcare topics, including Cystic Fibrosis. | | | Get current news on treatments, procedures and research, and watch doctor produced video updates on Cystic Fibrosis. |
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http://www.healingwell.com/cysticfibrosis
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| | Cystic Fibrosis - Pulmonologychannel |
| | Cystic fibrosis (CF) is the most common fatal, inherited disease in the United States (see Incidence). | | | We subscribe to the HONcode principles of the Health On the Net Foundation | | | CF causes the body to produce abnormally thick and sticky mucus in several different parts of the body, most prominently in the lungs and other parts of the respiratory system. |
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http://www.pulmonologychannel.com/cf
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| | Cystic Fibrosis, CF |
| | Use of our encyclopedia will enable you to make well-informed, responsible decisions for the promotion of your own health and wellness. | | | Refer to the individual supplement for information about any side effects or interactions. | | | Taurine improves the absorption of a fat meal in patients with cystic fibrosis. |
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http://www.truestarhealth.com/Notes/1199008.html
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| | Cystic Fibrosis Disease Profile |
| | 1936 - Fanconi refers to the previously nameless condition as "cystic fibrosis with bronchiectasis." | | | "Physiological Basis of Cystic Fibrosis: A Historical Perspective." Physiological Reviews 79 (1 Suppl.): S3-22. | | | Cystic fibrosis (CF) is a chronic, progressive, and frequently fatal genetic (inherited) disease of the body's mucus glands. |
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http://www.ornl.gov/sci/techresources/Human_Genome/posters/chromosome/cf.shtml
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| | Cystic Fibrosis Foundation - What is CF? |
| | What Is CF Home > About Cystic Fibrosis and "65 Roses" > What Is CF? | | | Visit www.cff.org or call (800) FIGHT CF to learn more about the services and programs available to people with CF. | | | Cystic fibrosis (CF) is a genetic disease affecting approximately 30,000 children and adults in the United States. |
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http://www.cff.org/about_cf/what_is_cf
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| | The Boomer Esiason Foundation - What is Cystic Fibrosis? |
| | Instead of serving as a lubricant, it clogs the respiratory system and allows bacteria to grow within it, impairing the body's natural defenses. | | | These treatments include the use of tobramycin - a drug therapy for CF approved by the Food and Drug Administration in 1997 - and experimental gene therapy treatment. | | | The most reliable diagnostic test is the "sweat test," aptly named because most cystic fibrosis patients have skin that is salty to the taste. |
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http://www.esiason.org/cf.html
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| | The DRM WebWatcher: Cystic Fibrosis |
| | According to the Cystic Fibrosis Foundation, Cystic fibrosis (CF) is the most common fatal genetic disease in the United States today. | | | Fortunately, there have been many new research discoveries, treatments, and support resources. |
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http://www.disabilityresources.org/CYSTIC.html
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| | Cystic Fibrosis Info |
| | About 10 percent of infants with cystic fibrosis have intestinal obstruction at birth due to very thick secretions. | | | Cystic fibrosis affects the functioning of the body's epithelia cells and exocrine glands--e.g., the mucus-secreting and sweat glands. | | | Vigorous physical therapy on a daily basis is used to loosen and drain the mucous secretions that accumulate in the lungs. |
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http://www.msu.edu/~luckie/cfgen.html
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| | Cystic Fibrosis |
| | Transition care - the Cystic Fibrosis NSW experience | | | Cystic fibrosis (CF) is the most common, life threatening genetic disorder in Australia. | | | There is currently no cure; however, with improved medication and treatment to manage symptoms, life expectancy has been extended considerably. |
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http://www.healthinsite.gov.au/topics/Cystic_Fibrosis
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| | Cystic Fibrosis |
| | With all of the investigations underway in gene therapy, improved drugs, and transplant experience, the future of CF patients appears brighter than ever before. | | | Cystic Fibrosis is a disease which affects the body's exocrine glands, including the pancreas, sweat glands, and the lungs. | | | Probability of Having a Child With Cystic Fibrosis |
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http://www.aarc.org/patient_education/tips/cystfibr.html
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| | Cystic fibrosis - MayoClinic.com |
| | Respiratory failure is the most dangerous consequence of cystic fibrosis. | | | Treatments for cystic fibrosis are aimed at relieving symptoms and complications. | | | Cystic fibrosis (CF) is a life-threatening disorder that causes severe lung damage and nutritional deficiencies. |
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http://www.mayoclinic.com/health/cystic-fibrosis/DS00287
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| | Cystic fibrosis - Genetics Home Reference |
| | Other factors likely influence the course of the condition. | | | Cystic fibrosis is an inherited disease of the mucus glands that affects many of the body's organs. | | | For example, changes in genes other than CFTR might help explain why some people with cystic fibrosis are more severely affected than others. |
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http://ghr.nlm.nih.gov/condition=cysticfibrosis
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| | Cystic Fibrosis - Doctor's Guide to the Internet |
| | Study Shows Intermittent Tobi Therapy Effective In Cystic Fibrosis Patients | | | The latest medical news and information for patients or friends/parents of patients diagnosed with Cystic Fibrosis. | | | New Orphan Drug May Be Effective Cystic Fibrosis Treatment |
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http://www.pslgroup.com/CF.HTM
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| | Cystic Fibrosis Information |
| | Traveling tips for those who have CF (Added Sept. | | | Transitioning from Pediatric to Adult CF Care (Updated Jan. 9, 2006) | | | Standards of care for patients with cystic fibrosis: a European consensus (Added Apr. 1, 2005) |
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http://www3.nbnet.nb.ca/normap/CF.htm
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| | Cystic Fibrosis Ibuprofen Laboratory |
| | The Cystic Fibrosis Ibuprofen Laboratory provides ibuprofen analyses and therapeutic recommendations to physicians treating cystic fibrosis patients with ibuprofen. | | | Welcome to the Cystic Fibrosis Ibuprofen Laboratory !!! | | | The old URL for the Cystic Fibrosis Ibuprofen Laboratory (http://www.cwru.edu/orgs/CFIBUPLAB/cfibuplab.htm) will soon be changing. |
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http://www.cwru.edu/affil/CFIBUPLAB/cfibuplab.htm
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| | Cystic Fibrosis |
| | The study also underscores the challenges encountered in the | | | Pancreatitis may occur in patients with nonclassic disease. | | | In theory, some patients may have a variant form of cystic fibrosis |
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http://www.medical-journals.com/real28.htm
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